For the past several months, I’ve been blogging about my experiences with colitis, telling my story from its beginning in 2014. But some exciting changes are afoot, so I’m pausing for a moment to tell you about them.
My life changed with diagnosis in March 2014, and then it changed again in summer 2016, when I was hospitalized with my worst flare-up yet. I haven’t written about that yet. I’ve now been out of the hospital for ten months, and am still recovering. My hair is still growing back, though I’ve taken off my wig. My energy has not yet fully returned. My BMs are still loose. I spend hours every day on self care: taking dozens of pills and supplements, cooking special food, exercising, meditating. I go to two or three appointments each week with doctors, naturopaths, therapists, and other healers. I do lots of research; I’m very diligent. It all makes me proud.
I’ve been juggling all this with working thirty hours a week, but a month ago I announced that I will be leaving my job in July. It’s a job that I’ve greatly enjoyed, and that I will miss a great deal. But I need to spend more time on healing, which is so time-consuming that it remains hard even when working just thirty hours a week, and I need to write this blog.
This is what I’m excited about: getting to spend real time writing my story, catching you all the way up to the present, through my struggles and the hospital and into my current recovery. The year since the hospital has, in many ways, been one of the best years of my life. It is the happy ending to my colitis story, even though it is not an ending. I have not yet found remission, but I have found my happiness again. That’s even more important. I need to tell you how I got here.
So in September or so, after Ron and I return from some much-needed road tripping, you’ll be hearing much more from me. My writing pace will accelerate (although blog subscribers will still just get one email a week–they will be longer emails, with more posts!). Here I’ll add an Inshallah, or “Lord willing,” to this plan, because by now along with happiness I’ve also achieved a healthy humility. Plans can be thwarted; anything might happen. But inshallah, come September, this is my plan!
And now, back to my story.