This year, my two jobs were ones I hadn’t pictured, and didn’t particularly want: Getting myself healthy enough to work again, and learning how to repair a busted-up house. Somehow, because the house was mine it felt like a part of me. It needed a deep cleanse, wounds mended. Never had I understood this about myself: My environment matters profoundly to me.
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It was nearly two weeks since I’d started the dreaded prednisone, and the results were in. And they were mixed. By the end of my first week on the drug, I could see clear improvement. There was no denying it. Within a couple days, I had a normal BM, one of the only ones I’d had in the seven months since my symptoms became severe. Then it happened again. Within … Continue reading →
I was having trouble believing something my doctors said. According to them, I only had proctitis. My disease was supposedly only in the rectum, the farthest-out portion of the colon. My colonoscopy in February and my sigmoidoscopy in May had shown the rest of my colon to look perfectly healthy, with a smooth, pink lining and tidy little red veins. It looked the way a colon is supposed to look. … Continue reading →
Nothing dramatic happened when I started the dreaded prednisone. Not at first, anyway. A pill; a swallow; I moved on with my day. I tried not to think about it, and to just keep eating the Specific Carbohydrate Diet and living my life. I would have to wait and see what happened. This disease was a constant exercise in patience. Meanwhile, one evening I walked to the park to watch Ron … Continue reading →
Today was Day 27 of the Specific Carbohydrate Diet, and my one-month trial was almost over. It was time to make some decisions. I’d given this diet a month because Breaking the Vicious Cycle states that you need a month to know if it will work for you. Presumably, if it works, your symptoms will improve: less diarrhea, less blood in your stools, more energy. If after a month your symptoms … Continue reading →
It was mid-May of 2014, and I had a choice to make. Two-and-a-half months after diagnosis, I was no closer to getting my colitis under control. I had switched meds for the third time two weeks ago, but the new meds weren’t working. My condition was even worsening. I wrote to my new doctor: Within a day or two of the medication change I began experiencing 2-3 bms per day, … Continue reading →
A week or so after starting my new meds, I began to mistrust my doctors. My symptoms were dramatically improving. Instead of five or more bouts with diarrhea each day, I only had two or three. There was less blood, less pain, less urgency. These meds seemed to actually work! I was doing everything I could to help things along. Every night, I diligently took my four huge Lialda pills, … Continue reading →